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Running with fibromyalgia?


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gideon
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PostPosted: 02/10/08 - 05:56    Post subject:
Ive been diagnosed with fibromyalgia recently after several very unpleasant and painful episodes during which I could hardly walk, let alone run. Im drinking medications and have to take care about myself more than I used to. Doctors advised me to practice moderate physical activity. Im an avid runner, and I dont know how this syndrome will affect my running. Anybody with the same problem?
jeremiah
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PostPosted: 03/10/08 - 19:04    Post subject:
Fibromyalgia is a chronic syndrome and it can be very painful. There have been certain researches proving that its a genetically predisposed disorder. It can, of course, affect your running when one of more severe episodes occurs, but I dont think that running can deteriorate your condition. Those mild physical exercises can be carried out at a rehab centre under the supervision of a specialist. They can also tell you how to plan your running in order not to tire your muscles too much. I also believe that in certain cases, running can ameliorate the state by activating and exercising groups of affected muscles and joints. Anyway, together with medications and physical therapy I think that you will feel much butter.
tonyara
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PostPosted: 10/03/08 - 15:28    Post subject: Fibro and exercise
I was diagnosed in June with Fibro, and it has effected all my physical activity. I feel better when I run, just not a day or two after. On good days, if you are like me, you feel like you can keep running just a little bit more. Then this causes bad days...I am still trying to figure out the balance of it all. Should have any useful wisdom to pass along, it would be much appreciated. I discovered diet and supplements make a difference, meat aggravates mine (especially red meat). I have found a couple of really useful books along the lines of diet and Fibro, but not much on exercise. They all just say, "stay as active as possible".

HELP, totally frustrated and confused here
Ginny
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PostPosted: 11/06/08 - 15:20    Post subject: Fibro-Fatigue & Pain
Good to see your post, Tonyara! Not happy that you feel the way I do, frustrated and hurting, but good feeling I'm NOT alone. I too was just diagnosed with supposed Fibromyalgia, and being a long-distance runner, I'm disgusted--lol. I won't ever give up though, or let it stop my running, I guess I'll just have to build back up slowly. Just like you said, you run/exercise on good days, thinking you feel better, then pay for it later strangely. It makes no sense. I also have joint inflammation this whole year. Diet seems to help, I'm eating healthier now (also recently diagnosed hypoglycemic), and adding more fiber and salads, and energy bars with higher protein content, rather than one with just quick carbs. Interesting about the red meat you mentioned, as I know with Gout this food can raise Uric Acid blood levels and cause pain for those sufferers, and I'm still trying to figure out what all is involved here with this Fibro, going on in our bodies. It seems like a general term. All I know is, if we're on this board, then we're RUNNERS and FIGHTERS... we're STRONG and we'll FIGHT THIS and come out healthier... but I'd still LOVE ANY advice too right now about exercise from anyone who's gone through this for awhile. THANK YOU!!!!
morus45
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PostPosted: 11/16/08 - 19:49    Post subject: Running and Fibro
I know I am too late with this post but I'm hoping it will help someone as the others did.

My doctor only said moderate exercise when he got the feeling that I couldn't do more. This past summer (after 8 years of not even bothering to try to run again, figured I couldn't), I tried running again and I'm up to a mile...well, OK, it's jogging and then I walk 4 miles. Each day and/or week I try to increase the length of the jog as opposed to the walk.

I haven't felt this good in YEARS. I've had fibro for over 10 years and I honestly think it's(jogging/walking) helped me more than hurt. When I told the doctor he said to keep it up and that my body would tell me when to quit.

NOW, the only time/s I would say don't push is if you are in a major flare and/or if you are suffering from some other condition where jogging is contraindicated. Otherwise, it will not 'hurt' the fibro.

I hope that you're have been able to run and that things are going well with you. Right now, I unfortunately have the flu, but before the fever hit, I was jogging steadily since April.

If you find yourself on this post/board again, please let us know how you do.

All the best .....Morus
Pandy
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PostPosted: 02/10/09 - 14:54    Post subject:
I am interested in seeing what the poster have found since their last posts. I have had fibro for years and want to start up running. First Walking, then jogging, then running, of course. I am out of shape and 54 years old. Those who posted that they do run and found later they have Fibro, are you still running? I want something to work for me. I'm tired of getting fatter and more out of shape and want to start doing something about it.

thank you.. Gentle Hugs.. Pandy
morus45
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PostPosted: 02/10/09 - 15:24    Post subject:
Pandy.....you can definitely do it...if I did...you can. Can we talk offsite possibly. I can tell you exactly how I did it and how long it took me. Listen, I still have fibro, but I lost 40 lbs and I feel that I have more hope and more stamina. The weight loss is a big thing, but not the biggest...once you feel those endorphins kick in...it's like someone breathing life and hope into you again

Let me know if you want the details. THis makes me so excited and I'm so passionate about it that if I help only ONE person, I would feel complete!

Please let me know......if you want the 'boring' : ) details.

Love and hugs,

Maureen Smile
Pandy
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PostPosted: 02/10/09 - 15:37    Post subject: fibro and walking
Wow, fast reply. sure I would love to know how you did it. I have always loved walking, even that for a couple days after, makes me ache. I have not done even walking in a year and that I HAVE to get back to. I know just dieting doesn't work for me at all, when walking I start to lose weight. So my idea was to walk, then jog, then run, and I know I will feel much better. I do need to find out how bad you feel the next day and days. I can walk every day, but never feel better in the muscles after I walk. But I know I would feel better health wise when I get started again.
Pandy
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PostPosted: 02/24/09 - 17:36    Post subject:
I would like the details on how you got started, Morus45. I have only been able to walk a few days here and there because of the weather being so cold here but I did get out today. Once I get in walking condition, I figure I can start jogging then running. How did you do it? slowly? or start running?

thank you, Pandy
ReneeB
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PostPosted: 03/13/09 - 13:39    Post subject:
Wow! I'm so excited to find this forum! I'm new here, but definitely not new to fibro. I've had it for about 15 years (half of my life) and I'm STILL trying to figure it out. I stumbled across this forum while I was searching for solutions for knee pain while running. I'm S-L-O-W-L-Y working my way up to running a 5K. I started back in December doing intervals (walk/run) with the Couch to 5K podcast and now I'm up to 25 minute runs (nonstop). Running is doing wonders for my body as well as my mood and I love the feeling of accomplishment I get from finishing a good run. The only problem is that I'm now having some ugly knee pain and I'm pretty convinced that it's from the fibro. My knees hurt in the same spot on both sides, on the inside of my knee... that oh-so-annoying tender spot.
Can anyone out there relate or share ideas on how to releive the pain? Right now I have to take Motrin before my run and Tylenol afterwards. It helps, but I'm looking for a better solution... preferably one that doesn't involve taking medicine. (Although I'm ok with vitamin suppliments).
I'm also aware that my shoes could be the culprit, so I would love some suggestions.

Thanks in advance!
koiotic
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PostPosted: 05/04/09 - 22:21    Post subject:
Yeah, I am so excited I find this forum, I know that I will be able to find a lot of answers to my questions.

I have an entire blog about what I have gone through with fibro - and beginning a walking program.....

I did not walk or run before I was diagnosed, so for me it has been quite the challenge to actually begin this for the first time at 36 years old.

Yesterday I completed the Eugene Half Marathon - mostly walking - it was great - and I finished - my next thing is running a 5K -

I think this is such a great thread, as people with fibro need to know that there are others out there that are doing this - The reason I started is because I saw a blog on a gal with fibro who is participating in Triathalons (that is my goal by the time I am 40)....I don't know if I would have started if I did not see others doing it -

Check out my blog - it is painfully long! But there is a lot of great information on diet, and supplements and books that I have found -

Hope others post on what they are doing - and I can hardly wait to be considered a "runner"......

Have a great day.
Koiotic
ladybug04
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PostPosted: 06/22/09 - 00:36    Post subject:
Koiotic,
I am trying to start running. I was diagnosed with fibromyalgia 4 years ago. I am only 24 and I am not ready to let it get the best of me. I would love to know how you got started running. How do I get to your blog?
Ladybug04
windshell
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PostPosted: 06/22/09 - 02:11    Post subject:
Hey ladybug. You have link to koiotic's blog in his signature. Wink
koiotic
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PostPosted: 06/22/09 - 13:29    Post subject: Blog
Hi - Were you able to get to my blog - and by the way I am a "she" - sorry if my name sounds boyish.....I raise Koi - that is what the name is all about!

Let me know how the journey goes - Fibro should not get the best of anyone....and I would not change my journey for anything - I honestly believe that fibro has saved/changed my life for the better - and because of it I have become a better person and know so much about myself and body now - things I never could have learned from books - Only experience.

Good Luck - and Hope to hear more from you!!! And I would love to know how you are doing - so I can learn from you as well.......
windshell
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PostPosted: 06/23/09 - 02:46    Post subject: Re: Blog
koiotic wrote:
Hi - Were you able to get to my blog - and by the way I am a "she" - sorry if my name sounds boyish.....I raise Koi - that is what the name is all about!

Heh, sorry. Embarassed
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Found a new job - No time for running
Thoughts on beer and running
what changes did you see when you first began running?
Terrible pressure on knees when running
Returning to running after a year pause
Running Footwear question
Running with dogs - accidentally
Funny running situations?
Improving my running
running is not my thing. marching band is. but you...
Breast Augmentation and running
Any recommended books on running for women?
when to change running shoes
Light shoes for running?
Foot type and running shoes choice
Your most inspiring moments in running
Help me with my running schedule
Outdoor vs Treadmill running
Running clothes for pregnant women?
Kids' running programs
How safe is running in the dark?
Throw up after running a mile
Carrying water bottle while running?
best running shoes for a heavyweight?
Period running cramps
Thryoid problems and running
Fast Food and running
Inconsistent with my running
Running with flu?
Running in L.A.
Ice and massage after running?
Hydration on summer runnings
Running in the New Jersey
Running for teens
Common mistakes in running?
Stomach problems when running ?
Running shoes for kids?
Articles on running
After a year break, I'm running again
How much benefit by running
The best age to start running?
4 Feet Running: Ep. 18 -- Philly Marathon Part 1
Encouragement when running
Terminology in running
The most hardcore thing in running is?
Rate your running skill
Weird things happening during running
What is your biggest running chalenge?
Running the neighbourhood
Feeling bad with every running?
Easy tired when running
Running songs
Who's your running partner?
best spikeless running shoes
Who is your running role model?
Wearing backpack when running?
Running like a pro
Running on the beach
Modifying shoes for running?
Brooks Adrenaline GTS 7 best running shoes
Walk breaks during running
Running while on antidepressants
Off season running
protein before or after running?
Your running routine
Why did you began running?
Brooks Glycerin 5 running shoes
Wearing goggles when running?
Other sports next to running
Running with electronics?
Did you tried cheap running shoes?
trail running in the rain
Night Running
For employed - Night or early morning running ?
How to breath through the nose only while running
Ever got embarassed on the running
Best temperature for running
Clothes for running
How to wash expencive running shoes?
What weather have to be for your running mood?
Cycling as cross training for running?
Asphalt or Concrete for running
Suit for Winter running
Fall is the best for running
4 Feet Running: Ep.24 - Is there a doctor in the house?
Running Camp for kids
Advices on breathing when running
Looking for personal running coach?
Any oil or cream protection for legs during winter running?
OrthoticsGood running bra
Running apparel / clothing
Running nerds
Swimming and running in what portion
Sunlenses or sunglasses for running
Uncomfortable new running shoes
Hip replacement and running
Miles running or miles cycling
Headphones for running?
Hardcore running?
Running parallel with cycling?
Losing motivation and losing sight of my running goal
Cycling or Running - Which is harder?
Running when you're sick?
Cycling and running in what dose?
Running and sickness problem
What is the frequency that your running naturally slows down?
Replacing running shoes after a month?
After a long absence I'm back to running
Where to find a resource for local running tracks?
Your Favorite Running Shoes?
Thinking about making a running blog
Numb foot when running
Running on the beach is more difficult?
My first pair of running shoes!
Keeping hair off face while running
Contact lenses or glasses for running?
Which watch for running timing?
How many years of running experience you have?
Change training from running to cycling
who makes the ugliest looking running shoes?
Swimming vs Running - What gives you bigger excitement?
Watch for Running?
Cold weather and running schedule
maximum humidity for running
The right shoes for running
Running vs cycling training
Increase running mileage
Running nude
Where to buy a running skirt?
Running Software info
Anti-depressants and running question?
Biggest sacrifice for running ?
Your activities before you started running?
Running pace concept
Sneezing after a running on the rain
Good Trail Running Shoes
Winter running training
Where to buy good running shoes in NYC?
starting with running again after hysterectomy
Are you dedicated to running?
Have idea of starting a running club
The best running routine
Running on a high altitude
My biggest sacrifice for running is...?
Running shoe recommendations for flat footed
Running aches and pains
Running apparel for ladies
Running vs Cycling thoughts
Running Camps
Running gear info
Running shoes for sand
Is it possible to get lactation from running?
Worst and Best running shoes
Ideal Running Shoe Shape
Running in High Heels?
Running shoes problem
Timing devices for running
styles of shorts for running
Flat foot and running shoe selection
Just lost a toenail by long distance running
menstrual like cramps while running
what was your worst running shoe ever?
Cross-training with running help swimming?
Running shoe average lifetime
Sweat Stains ruining my running shirts!!
Kicking myself in the ankle with new running shoes
Always have multiple pairs of running shoes
Which one is the best online running shoe store?
Resuming Running After C-Section
Losing toenails with wrong running shoes
Washing running shoes?
What running shoes during hot time?
Competitive Endurance Running Research Opportunity
new to running for basic training
Running Faster
Taking up running for the first time
El Guapo Running Club in Jacksonville, FL
Running with your dogs
Does your running have a purpose?
Running City Tours in Buenos Aires, Argentina
Back to running... a few questions
Looking for running partner in Jacksonville, FL
Heart Rate While Running
Question - Running 4 Months, Hobbling For 3 Months...
Running after abdominal hysterectomy
Balanced running programme
swimming vs running vs cycling
Help with Shin and Calf Burning While Running
Need a Running Partner
Anyone running The Bourbon Chase?
Chicago Running
Running City Tours in Buenos Aires, Argentina
Does cycling help running?
Personalized Running shirts
Heart rate increases rapidly while running then decelerates
HELP new to running and need to for basic!!!!
Dressing for Cold Weather Winter Running
Novel on Running-"Runner's Honor"
How can I make a good running plan?
Running up/down hill
The surface for running
Running for my Father - Inspirational Film on DVD
Getting back into running - problems with ITB?
Feet pain when running
Country Music Marathon '09 - anybody running it?
problems with running stride
Bodyweight Exercises while running?
How to stud your shoes for winter running
Triathlon running forum
What kind of running log is good for me?
New Balance Running Shoes
Need Some advice on Running.
Hello, I'm new (new to running)
Running in Hiking Shoes
Switched to running and muscle/weight concerns
Improve Baserunning speed
New to this site and New to running!!
What are some good running shoes for a treadmill?
Classics for running? Also other recommendations?
Pain in left leg after running
Supplements for running
running when its hot and humid
Help Please - Evening running so much better!
something for running on those hot summer days
Heart rate while running
Looking to start running need REALLY high tops
350 lbs man needs running advice
Getting Back into Running
Has anyone heard of Asics Kinsei Shogun running shoes?
Running and a metallic taste in my mouth
Overweight and want to start running.
Free Newton running clinic in NYC on 10/30
Bought Exact Same Running Shoes, New Ones Hurt Feet
Need information on running with 5 yr old girl
post-marathon running pain
new Fitgerald running book-first chapter free
Survey about running shoes
Difference between jogging and running
Running slow hurts while running medium-fast does not???
running downhill on recovery days
Pain in ankles/lower back has prevented me from running
Running Blog
Running Incantations
Interview with Charlie Engle from Running the Sahara
Running and sensitive stomach problems?
Expert Advice needed - trail vs running shoes
Female Running Partner needed in Haymarket/Gainesville VA!
Adult Running Camp
Wind Resistance and Running
bad if running marathon with not many miles?
New at running but loving it... is it OK 5k every day?
I'm looking for funny running shirts, any suggestions?
Difference between running outside shoes and treadmill shoes
walk/running with fibromyalgia and encountering fatigue
best running shoes
Calves tigthen when jogging/running
Running Barefoot?
High Heart Rate while running? Something to be worried about
I need some helpfull critisim for my new website on running!
Run Mate - an iPhone app for running training plans
What do u eat after running???
Comments and reviews on article "Do Running Shoes Do More Harm Than Good?"
Left foot/ankle pain while running
Good Running Headphones
Looking for a running partner in troy ohio
UD Running Study
The most suitable clothing for running???
Running the Great Wall
Are you running??
A running student!
Long Term effects of Long distance running
NB shoes,perfect for running?
Barefoot running - foot & ankle pain
Running For Weight Loss
Running Belt
endurance + higher energy while running
running sick
Which running shoes should I get
Running Injury
Interval running workouts
Knee Pain From Running
fibromyalgia and running
Nike GPS Running Watch Released
Back to running
How do i train with cycling to replace running? foot unjury.
Off-season cross country winter running
My First Running Plan
NEED RUNNING SHOE ADVICE
Headache after running
upper and mid back tightens when running, any thoughts?
What do you think of this running shoe?
Running with chronic illness
Just bought my first running shoes, total newbie! Need advi
What I do after running?
Fibromyalgia and Running
What's your running shoes?
Running Flats for Wide Feet
New online running program
Strength Training Routine To Prevent Knee Pain When Running
Running 2.4km in under 11 minutes
Feedback for new running gear
Inspiring Running Books
running faster
Reading Running Fiction
Public Awareness of the risks of Marathon Running Study
Running my 1st San Francisco Marathon
Running Breathing Tips
Trail running shoes for over-pronators/ "Beast" owners
Attn: Ultra Runners---Running for the Buckle
Trail Running Streaks
Overpronators and Neutral running shoes
Running Beginner to Full-Marathon
Running Tips for New Runners
Help critique this intro running guide
I get bored when running...
Mud Running
Best Rated Running Shoes
Running Training Methods
My New Running Blog
Huge List of Best Running Books and Movies (Almost 200)
Stress fracture...no running for 6 weeks
Recommended Running Shoes
How to Choose Your Basic Running Gear
Running shoe good for the gym, too?
Smart Ways to Prevent Running Injuries
Running Health Benefits: A Quick Rundown
Ever meditate while running?
Running Music confusion
Things You Can Learn From Distance Running
Running as Part of Weight Loss Systems
running with orthotics
Brooks Glycerin 9 Running Shoes
UD Running Study
I need some helpfull critisim for my new website on running!
Running races for charity
What is a good running schedule for a 17 year old male?
new running questions
Compression Tights For Marathon Running
No Feeling of Exertion While Running?
10k Running Study, Participants Needed
Pains while running?
How to Choose Running Shoes
Middle School Running
Help! How much to eat to gain weight while running 50mpw
Running for Childhood Cancer
customizing running shoes/trainers online - please help
running question
Cool Runnings Training Program
Is running two miles a day enough to lose weight? 
Running Aid
Running Project Concepts
running for flat abs and weight loss
Is this a good routine to increase running speed+endurance?
High arches need help on picking running shoes
RunningBrief Weekly Digest
Great new running product
Returning to running after a stress fracture
16 year old male new to running :D
Running Frequency and Distance
Running a Hilly 50k
Running with Strength Training
Profile Design Running Belt
Running Chat
Running Headphones?
Quick survey: Study about technology use while running
Help with running for beginner runner having stress fracture
Stomach pains while running
Running Shoes for Flat Feet
Finally started running again.
An app for safe running

 




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