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RangerG
Bounty Hunter
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Joined: 13 Mar 2003
Posts: 7301
Location: Gmail Server Number 126
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 Posted: 04/19/04 - 12:06 Post subject:
| MechEngDropout wrote: | | What is vWD? I haven't heard of it before. |
Von Willebrand's Disease (vWD) is not a disease at all, but the most common genetic disorder in the world (classic hemophilia is more well known due to its connection with the royal families of Europe). In fact, vWD is 100 times more common than classic hemophilia! It was discovered by a Finnish doctor in the 1920s, who named it after himself and called it a disease. Later, Dr. von Willebrand discovered in truth that the illness was linked to a missing blood factor, which assists with the clotting of blood. He named the factor after himself as well - von Willebrand's Factor (vWF). The disorder is not sex linked (autosomal), meaning that both men and women can have it, but some can be carriers only and not manifest any of the symptoms. VWD occurs when the body makes either inferior vWF or none at all. Other blood factors can be short-changed as well. Generally, vWD is divided into three types: Type I (mild), Type II (Medium) and Type III (severe). The lower the type, the less the symptoms will occur and the less strenuous they will be.
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rolling rock
The Pinball
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Joined: 15 May 2002
Posts: 16218
Location: unknown zone
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Posted: 04/19/04 - 12:08 Post subject:
| Sahara wrote: |
Wishing knowledgeable doctors and effective treatment for the little guy. |
the "cure" often lies in the treatment. i'm wishing you all the best Ranger.
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HYPERASHEL
Member
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Joined: 18 Nov 2003
Posts: 15397
Location: The South's Sauna, Atlanta
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Posted: 04/19/04 - 12:15 Post subject:
WOW!!!! Ranger, i am wishing all of you and his physician the best of luck, a stage III vWD is nothing to sneeze at. But with the support he's got he's in good hands.
i can just about see Alia's smile while holding him too.
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Maddies Wench
Flailing Homosapiens
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Joined: 12 Jun 2003
Posts: 6103
Location: Seeking out the poorer quarters where the ragged people go.
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Posted: 04/19/04 - 14:09 Post subject:
| HYPERASHEL wrote: | WOW!!!! Ranger, i am wishing all of you and his physician the best of luck, a stage III vWD is nothing to sneeze at. But with the support he's got he's in good hands.
i can just about see Alia's smile while holding him too. |
Wassat's supposed to mean? You think I gushed and cooed and crap?
Oh no! I let his pop pop do the silly stuff. We just chatted about stuff..you know..like how hospitals smell like butt and that all he needs to do is give that right leg a good push and he'd be over on his belly like nuthin...
I'm a firm believer in the NO BABY TALK rule. Why make him learn how to talk twice?
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genie
Master of Prissface
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Joined: 14 May 2002
Posts: 16194
Location: Finding serenity one day at a time
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Posted: 04/19/04 - 14:47 Post subject:
Wow, at least they found something.....hopefully the meds will help. Poor little guy......
So what does that have to do with the seizures, or was that unrelated?
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Maddies Wench
Flailing Homosapiens
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Joined: 12 Jun 2003
Posts: 6103
Location: Seeking out the poorer quarters where the ragged people go.
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Posted: 04/19/04 - 14:50 Post subject:
| genie wrote: | Wow, at least they found something.....hopefully the meds will help. Poor little guy......
So what does that have to do with the seizures, or was that unrelated? |
I'll answer this one...they aren't seizures. They're night terrors...according to the sleep specialists.
It only happens when he's sleeping or about to sleep. I watched him while he was in my lap. He never gets to REM sleep...he's all twitches and starts.
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genie
Master of Prissface
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Joined: 14 May 2002
Posts: 16194
Location: Finding serenity one day at a time
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Posted: 04/19/04 - 14:52 Post subject:
| Maddie's Wench wrote: | | genie wrote: | Wow, at least they found something.....hopefully the meds will help. Poor little guy......
So what does that have to do with the seizures, or was that unrelated? |
I'll answer this one...they aren't seizures. They're night terrors...according to the sleep specialists.
It only happens when he's sleeping or about to sleep. I watched him while he was in my lap. He never gets to REM sleep...he's all twitches and starts. |
Now THAT makes more sense based on what Ranger was saying he does......I wonder if this is an early indicator of hyperactivity?
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robp
Pyromaniac
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Joined: 26 Jul 2002
Posts: 16242
Location: Waiting in line at the beer store...
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Posted: 04/19/04 - 14:53 Post subject:
Good luck to the little dude. I hate it when kids are sick.
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akern
Member
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Joined: 31 May 2002
Posts: 17149
Location: CTU
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Posted: 04/19/04 - 15:21 Post subject:
| robp wrote: | | Good luck to the little dude. I hate it when kids are sick. |
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keltic63
the kilted one
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Joined: 17 May 2002
Posts: 8574
Location: under the weather
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Posted: 04/19/04 - 15:24 Post subject:
| Maddie's Wench wrote: | | I'm a firm believer in the NO BABY TALK rule. Why make him learn how to talk twice? |
we had great success with using sign language with our youngest. it helps them communicate when they just don't have the verbal skills. then as their speech develops, the signs extinguish.
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genie
Master of Prissface
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Joined: 14 May 2002
Posts: 16194
Location: Finding serenity one day at a time
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Posted: 04/19/04 - 16:47 Post subject:
| keltic63 wrote: | | Maddie's Wench wrote: | | I'm a firm believer in the NO BABY TALK rule. Why make him learn how to talk twice? |
we had great success with using sign language with our youngest. it helps them communicate when they just don't have the verbal skills. then as their speech develops, the signs extinguish. |
All except for that one....
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coachmarkos
my boys could swim
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Joined: 14 May 2002
Posts: 11387
Location: 1st in AFC West
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Posted: 04/19/04 - 16:53 Post subject:
glad he's home.
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copteacher
Adjunct
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Joined: 08 Jun 2002
Posts: 20588
Location: Teaching in the Halls of Justice
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Posted: 04/19/04 - 17:33 Post subject:
CHOP's hematology people are alright. We have dealt with several of them. They will take good care of the little guy.
Best of luck and prayers to the family.
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